Wednesday, November 19, 2014

Thank you so much Muscular Dystrophy Canada!

Brad at the Durham Region Walk for Muscular Dystrophy
When it comes to sharing my story of living with Muscular Dystrophy this also includes taking you through the challenges I might face when dealing it's progression. One of the issues I have been facing a lot lately has been related to the challenge of getting up from a seated position. I am sure you can understand that this has caused more than a few challenges within my daily life. Including getting up and out of my car and also when it comes to standing up from the couch in my apartment. You see part of living with a muscle wasting condition is dealing with it's progression and slowly losing the ability to things that you once found much easier to do. Surprisingly I have been able to push through the frustration and find new ways to help make my life a little easier. Simple things like pushing up off of a coffee table has been working for me for many years. But I have finally reached the point where it simply isn`t providing as much help as it use to. This is when I finally decided it was time to reach out to Muscular Dystrophy Canada - as a long time volunteer I knew they would be able to help me.

Now I am sure if anyone has spent any time looking at mobility aids that the first thing you notice is that some items can be very expensive. So some of us just have to make due and continue using methods that work for us such as pushing up off of a table or another chair to stand up. But sometimes you reach a point when you can no longer make due. That is why I am so thankful for Muscular Dystrophy Canada and those who donate in support of their mission to enhance the lives of those affected by neuromuscular disorders. I am so thankful that they fully understand the issues we face when it comes to dealing with the progression of Muscular Dystrophy. Thankfully as a registered client of Muscular Dystrophy Canada they were able to help me through there Equipment Program. I am happy to report that it was just last week when I received my new lifter chair. It really does go a long way in helping me stand up from a seated position. To be honest it has changed my life and that is why I am so thankful for those who donate and support organizations like Muscular Dystrophy Canada. So if you have ever donated in support of their efforts thank you for playing a role in changing my life. 
My Lifter Chair thanks to Muscular Dystrophy Canada`s Equipment Program 
Thankfully the process I went through of getting a lifter chair was made easy by the staff at Durham Medical - a long time sponsor of the Durham Region Walk for Muscular Dystrophy. I was really impressed with their service and the fact that out of the two mobility aid stores I went to they actually gave Muscular Dystrophy Canada the best price. Once I had the appropriate forms filled out I mailed them back to Muscular Dystrophy Canada and within a week my chair was delivered to me.



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Monday, October 6, 2014

Welcome to the My Becker's Story blog!

Welcome to the My Becker's Story blog!

Join me as I share my Becker Muscular Dystrophy Story.


My name is Brad Miller I am a freelance journalist living with Becker Muscular Dystrophy, a condition which limits my ability to walk and gets progressively worse over time. I created the My Becker's Story blog in 2010 to share my story and to help raise awareness about Muscular Dystrophy. Along with sharing my story I also raise awareness about accessibility and the issues people with disabilities face. When it comes to the My Becker's Story blog even though the focus is on Becker's Muscular Dystrophy I also want to encourage those affected by other conditions even other forms of Muscular Dystrophy to join in as well. I truly believe when we join "Together" we can make a difference in our communities and raise even more awareness about Muscular Dystrophy and the issues people with disabilities face. The main focus behind the My Becker’s Story blog is to tell my story in hopes that it will somehow help those living with Becker’s Muscular Dystrophy, as well as their families and friends.

What people are saying about the My Becker's Story blog:


"Hi there, I also suffer from BMD. Just read the blog and the first half is like reading my personal history!!"

"I ran across your spot today, you sure have a lot on here I will have to check in a lot. I also have BMD and everything you say resonates deeply."

"I am also in my mid-30's with Becker's from the UK so thought i'd join and say hello! Struggling with all the same things as mentioned in the blog!"

"I am new to this group. Just want to say it is nice to meet people who understand."

 "I love your blog and it is nice to know there are others out there facing the same challenges as I do each and every day."

If you would like to read my personal story about growing up with Becker Muscular Dystrophy please click on the image below.


When it comes to living with Becker's Muscular Dystrophy I intend to take what I have been through in my life and some how use it to help those going through a similar situation. When it comes down to it the main idea behind My Becker’s Story is to help those like me who are living with Becker’s Muscular Dystrophy, by creating a place for us to connect. I truly believe that we are in this "Together". And I believe that with every one’s help that together we can help raise awareness about Muscular Dystrophy around the world.
  

The Walk for Muscular Dystrophy



Team Brad at the 2013 Durham Region Walk for Muscular Dystrophy

 Along with sharing my story I also aim to make a difference in my community. Since 2010 my friends and family have joined "Team Brad" in support of my efforts to raise funds that benefit people like me who are living with Muscular Dystrophy. The Durham Region Walk supports Muscular Dystrophy Canada’s mission to enhance the lives of those affected by neuromuscular disorders. To learn more please (Click Here)

Thank you for visiting the My Becker's Story blog!


Join the My Becker's Story blog on social media


Saturday, October 4, 2014

Dealing with falls and using the Gowers Maneuver

Growing up with Becker’s Muscular Dystrophy definitely has its challenges. Throughout the years I have actually tried to ignore the fact that I even had Muscular Dystrophy. Something many of us do when diagnosed with any condition. The truth is you can only ignore it for so long. You see from time and time little things will happen that quickly reminds us of our condition. It's in these time's when most of us might feel alone in our situations. Most of my reminders come in public when I am either walking in a store or just simply stepping off a curb when one of my leg gives out causing me to fall. It's like one moment your walking without a worry in the world and the next thing you know your on the ground. Thankfully when this happens it usually doesn’t result in an injury, but I am sure you can understand it does leave me feeling embarrassed and at times pretty frustrated.

I am sure those living with Becker's Muscular Dystrophy or other conditions who are no longer walking and are now using wheelchairs can remember the days when they too faced similar situations. To be honest and I am sure many others will agree you never really get used to falling. After years of suffering many slips and falls I have yet to reach a point in my life where I get up off the ground with a big smile on my face. It is truly hard to act as if nothing really happened especially when it happens in front of family or in my situation as a child when I was trying to impress a girl. But I will save that one for another blog post. Now when it comes to falls at times it can put us at risk. The other day I was walking in a parking lot when one of my legs gave out, I ended up on the ground behind some parked cars. Thankfully no one was backing up out of a spot or I might not be here to share this blog post with you. Thankfully in this situation I was able to use the chrome bumper of a pick up truck as a support to help me get back up. You see when those of us the BMD fall we need something to push off of to get up off the ground. Eventually as our muscles weaken it becomes harder to push off of our legs to get back up. That means if we fall
in an open area we may have to crawl to the closest chair or table so we can use it to push off of to help us get back up. Many of us in our younger years were able to use something known within the Muscular Dystrophy community as the Gower's Maneuver - but eventually it does become much harder for us to do.

When it comes to living with Becker Muscular Dystrophy there are those out there who believe our lives are relatively easy. Sure in the early years we might be better off but as we age we do slowly lose the ability to things most people take for granted. When it comes to the issue of dealing with falls related to living with BMD eventually we do reach a point when the only way to avoid falls is to consider using mobility aids such as canes and wheelchairs.


Related Posts:
My personal story growing up with Becker's Muscular Dystrophy,
Life after being diagnosed with Becker's Muscular Dystrophy,
Living with Muscular Dystrophy and dealing with "Weak Days",
Living with BMD: Dealing with falls & size of calf muscles &
When stairs become your worst enemy


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Wednesday, October 1, 2014

Matt Garwood supports Laps for Muscular Dystrophy

Photo Courtesy of Matt Garwood Racing
The My Becker's Story blog would like to introduce you to Matt Garwood who becomes the fourth driver to join in support of Laps for Muscular Dystrophy in 2014. If you are new to the Laps 4 MD fundraising initiative our drivers donate $1 or more to Muscular Dystrophy Canada for every lap they lead. Muscular Dystrophy Canada supports people affected by muscular dystrophy and related muscle diseases. Together, these rare conditions are referred to as "neuromuscular disorders.” Neuromuscular disorders are a group of diseases that weaken the body’s muscles. 

Matt Garwood becomes the fourth race driver to support Laps for Muscular Dystrophy in 2014. Joining Dirt Track Racer Shelby Mills, NASCAR Canadian Tire Series driver Joey McColm and British Superbike Championship racer Ben Young in supporting Muscular Dystrophy Canada.

Matt Garwood
Matt currently competes in the Formula 1200 Series with FEL Drives, OffAxis Paint and Vallis Motor Sport. In 2012 was also awarded Rookie of the Year. We are so excited to have Matt join in support of Laps 4 MD and if you read the comment below you will see that Matt is excited to be able to play a role in helping to improve the lives of over 50,000 Canadians affected by Muscular Dystrophy. 

Matt Garwood says; "It is a honour to support and represent Laps4MD throughout the conclusion of this year and in to the 2015 racing season. Laps4MD has been helping people with Muscular Dystrophy and I am thrilled to lend a hand"

We encourage you to learn more about Laps 4 MD by following @LAPS4MD on Twitter and on Facebook at facebook.com/Laps4MD. Canadians can also learn more about Muscular Dystrophy Canada's mission is to enhance the lives of those affected with neuromuscular disorders at facebook.com/muscle.ca and on Twitter at @MD_Canada.

You can connect with Matt Garwood on Twitter at @MattGarwood31 



Monday, September 29, 2014

Ben Young joins in support of Laps for Muscular Dystrophy

Photo by Londonbikers.com, courtesy of Ben Young Racing 
The My Becker's Story blog is so happy to welcome Ben Young to our list of racers supporting Laps for Muscular Dystrophy in 2014. I invite you to read the press release you find below from Ben Young Racing.  

Sheffield UK - September 29, 2014 - As Muscular Dystrophy Awareness Month concludes Canadian resident Ben Young, who competes in the British Superbike Championship (BSB) with Team WD40, is proud to announce his participation in the Laps 4 MD fundraising initiative in support of Muscular Dystrophy Canada.

Celebrating 60 years of progress Muscular Dystrophy Canada supports people affected by muscular dystrophy and related muscle diseases. Together, these rare conditions are referred to as “neuromuscular disorders.” Neuromuscular disorders are a group of diseases that weaken the body’s muscles.




In support of the Laps 4 MD “Race for the Cure”, Collingwood-based custom home builder and longtime sponsor Scot-Build Developments Inc. will donate $2 per lap completed in the Top-15 by Young in the remaining two rounds of British Superbike Championship at the Silverstone GP, 03-05 October and Brands Hatch GP, 17-19 October.

Young earned his best finish of the season so far with 12th place finish the last time he raced at Silverstone and followed up this result with a 14th place finish at Donington Park earlier in September.

“I’m thrilled to welcome Ben to the Laps 4 MD family of racers and greatly appreciate his and his sponsor Scot-Build Developments’ support! Ben will not only be our first international racer he’ll be the first motorcycle rider to race towards a cure on behalf of Laps 4 MD.” said Laps 4 MD founder Brad Miller


Young will join Laps 4 MD racers NASCAR Canadian Tires Series driver Joey McColm and Canadian Auto Dirt Track Race Shelby Mills who have supported this initiative this season.

“Its an honour to help support Laps 4 MD and their efforts to help make a difference in the lives of over 50,000 Canadians affected by neuromuscular disorders.” said Young

Young encourages Canadian fans to learn more about Laps 4 MD by following @LAPS4MD on Twitter and on Facebook at facebook.com/Laps4MD. Canadians can also learn more about Muscular Dystrophy Canada's mission is to enhance the lives of those affected with neuromuscular disorders at facebook.com/muscle.ca and on Twitter at @MD_Canada.

UK fans can learn more by liking:

To connect with Ben Young visit: www.fogi.us , on Twitter: @bcyoung86, and on Facebook: www.facebook.com/BenYoungRacing


This press release was issued by Ben Young racing


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