Wednesday, May 1, 2013

Advice for those recently diagnosed with Muscular Dystrophy

Introducing the My Becker's Story "Question of the week". A great new way to interact and provide helpful information to others living with Muscular Dystrophy. This week we ask the question: "If you had one piece of advice to give to someone who was recently diagnosed with Becker's Muscular Dystrophy or for a parent of a child diagnosed with BMD or any other form of Muscular Dystrophy what would it be?"

Many people shared a few of their tips which many will find very helpful if they have recently been diagnosed with Muscular Dystrophy. Here are just a few of the answers we received which we hope will help those recently diagnosed.

 Gord - Begin planning for your future. BMD is not a death sentence. You can live a "normal" life well into your senior years. Find what you like and can do physically and look at career options as early as possible then get the education necessary. Don't focus on what you "can't do" but on what you can!

Layanne -After diagnosis you may feel like you need to research, research, research. That you have to know everything about the condition. This can be so daunting and overwhelming. My advice would be - Take it slowly, you don't need to understand it straight away, slow down.

Dawne - After the shock, anger, and sadness after the devastating diagnoses all I can say is deal with each and every day slowly, it takes time to take on board everything that you will have to deal with in the coming months/years. Support groups are a great way to better understand how other people cope with their own individual circumstances, and share information.

Andrew - You need time to digest it - it took me years. Find out a little sure but don't worry about the future, keep as active as you can and keep smiling. The progression of BMD is so varied it's impossible to predict it's course or what issues you will have.

Karen - Lots of high/low moments with our son, lots of listening, time and understanding needed. Always look to the future and plan ahead.
 
Lyndon - Main priority is keep active, keep walking. do your stretches, and exercise plus eat well.


I really want to take the time to thank everyone who was able to take the time to answer the My Becker's Story "Question the Week". Thank you for taking part and joining together to help make a difference in the lives of others affected by Muscular Dystrophy and other conditions. Thank you.

If you would like to make a few suggestions as well please join us on Facebook or feel free to post in the comments section found below.




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