Thursday, September 9, 2010

A little bit about me the author of My Beckers Story

My name is Brad and I’m the author of the My Becker’s Story blog. I was first diagnosed with Becker’s Muscular Dystrophy at the age of 10 and ever since that day I have faced many challenges and even frustrations related to growing up with Muscular Dystrophy. Currently I am in my mid-thirties and as I grow older my plan is to use my everyday struggles to help shed some light on what it’s like living with Muscular Dystrophy. The whole idea behind the My Becker’s Story blog is to tell my story in hopes that it will somehow help those living with Becker’s Muscular Dystrophy, as well as their families and friends.

Outside of the issues I face living with Becker’s Muscular Dystrophy I am happy to say I actually grew up just like any other child my age. I was able to hang out with my friends and pretty much do the things most regular kids could do, sure there were times when I struggled but I always had fun. As you can see I didn’t let my condition get in the way of me having a good time. Still to this day I like to try my best to enjoy life and sure there are certain things I can no longer do but I don’t let those things bother me. Throughout my life I have had many different hobbies that I believe have helped to take my focus off of my troubles. You see since I was a child I grew up with a strong interest in cars maybe this started because I grew up in the 80’s and watched shows like the A-Team and the Dukes of Hazard. At one point in my life I really wanted to become a car designer and use to spend my time drawing up my own designs. I also at one point in my life wanted to become a professional race car driver but the closest I ever came to seeing this dream come true was driving Go-Karts at a local race track called Family Kart Ways which sadly no longer exists. But my love for all things automotive continues still even today I enjoy watching TV shows like BBC's Top Gear and Motoring TV. Watching shows like these make me really wish I was able to drive as many cars as they do and that is one of the reasons I include car reviews as part of the My Becker’s Story blog.

Right now at this point in my life I just want to enjoy every moment but in life sometimes it’s not that easy. Over the last few years and after all I have been through at times I really feel like luck isn’t a friend of mine. And like everyone who has faced hard times I also tend to wonder when the good things in life are going to start happening. You see in my life I’ve had many up’s and downs, from learning I have Becker’s Muscular Dystrophy to being bullied throughout my school years simply because I walked a little different. Now in the last two years I have faced some pretty big challenges, some due to the Becker’s Muscular Dystrophy and some not. For me the saddest and most devastating thing to ever happen in my life occurred at the beginning of 2009 and 2010. I have come to understand that in life sometimes things happen that we just can’t understand, even things that can leave us hurt and heart broken. For my wife and me it was the loss of our two daughters, our first we lost at 36 weeks in 2009. We were more than devastated, we were heart broken and our world turned upside down due to the still birth of our first daughter. Eventually we did chose to try again but this time my wife’s was referred to the High Risk Pregnancy program at Mount Sinai in Toronto, this due to the fact that she was diagnosed with a blood clotting disorder called APS. So over the next 6 months we would make the long early morning journey into downtown Toronto every two weeks and everything seemed to be going as planned, the baby room was set up, and with-in the next few months we would be bringing our new baby home. Sadly though we lost our second baby girl at 25 weeks, a full year and two weeks after we lost our first child, for us the start of 2010 was extremely hard. And I don't know how we would have made it through both situations without all the support we received from our families and friends.
As you can see in life at some time's we need other's people's support, truth is we all I have to deal with some pretty tough situations. So when it comes to Becker's Muscular Dystrophy I intend to take what I have been through in my life and some how use it to help those going through a similar situation. When it comes down to it the main idea behind My Becker’s Story is to help those like me who are living with Becker’s, by creating a place for us to connect. I truly believe that we can learn a lot from each other. And I believe that with every one’s help that together we can help spread the word about Muscular Dystrophy not only in Canada but around the world.

Thank you for visiting My Becker’s Story




10 comments:

  1. I'm so proud of you Brad! For writing this blog and for sharing your very sad and difficult losses.
    you're the best!
    MOM

    ReplyDelete
  2. I AM A 42 YEAR OLD SINGLE MOM,I JUST FOUND OUT ALL OF MY CHILDREN HAVE MUSCULAR DYSTROPHY.YOUR STORY WAS VERY BRAVE AND SAD.GOD BLESS BOTH OF YOU.

    ReplyDelete
  3. Over the next few months, Facebook will be archiving all Facebook groups created using the old groups format this means that everyones comments will be removed once they remove the old page!

    So I want to share a few of the comments regarding this post below before they are removed.

    - Sad to hear about the really tough time wife & you have had in the last couple of years....i guess these things just make you stronger. Becker's has/will shape your life (it has mine too) but i think maybe it makes us who we are rather than just someone with mobility probs that people in the street might see us for. We just have to try make the most from the hands we've been dealt i think.

    - I am glad you are able to share your story Brad, there is no making sense of it , but I am always amazed at how strong you two are although I am sure you never wanted to have to endure such difficulties.

    - The only way to survive this disease is by turning the bad into something good. Brad, sharing your story is one way to do that.

    ReplyDelete
  4. My 6 year old son was recently diagnosed with BMD, and your page is such a help to me. I am so new in the MD world that I dont even know where I fit in. I have hope for my son that we are going to get through this. He is responsive to his therapy and I will continue to do his stretches each day. I pray for you and mine and all the families that they find a cure so there will be no more uncertanties. God Bless you Brad...Thank you for what you are doing. Keep your chin up high and keep believing.

    ReplyDelete
  5. Brad form the My Beckers Story blogSeptember 11, 2011 at 6:21 PM

    Thank you for the kind words Ruthanne I find them very encouraging, I hope you and your son are doing well, I am so happy to hear my blog is helping others get through things. I am glad to hear he is responsive to his therapy keep doing those stretches I know it helps me. I will pray for you as well and lets hope we find a cure one day soon. Again than you for the encouragement please stay in touch!

    ReplyDelete
  6. I clicked on the link Pastor Dave posted in a newsletter, not knowing what it was about. My younger brother has BMD, & struggles with keeping a positive outlook. I'm excited to share your blog with him. Thanks!

    ReplyDelete
  7. Brad from the My Becker's Story blogNovember 8, 2011 at 12:24 PM

    You are very welcome! :)

    ReplyDelete
  8. Hey Brad my name is Peter age 50 I have Beckers MD finnaly a picture of big calves like mine Im not much on the computer but would like to make contact one day , not a lot of us out there or is there.

    ReplyDelete
  9. By the way Peter age 50 from Australia

    ReplyDelete
  10. Brad from the My Becker's Story blogDecember 13, 2011 at 10:40 PM

    Hey Peter it's great to meet you! I am so glad you found the blog! Please feel free to contact me any time at: my-beckers-story@hotmail.com would love to stay in touch! Also if you are on Facebook you can join us and meet even more people living with BMD!

    ReplyDelete