Personal Becker Muscular Dystrophy Stories
The My Becker's Story blog -
Join Brad Miller who was diagnosed with Becker Muscular Dystrophy at just 10
years old, a condition which limits his ability to walk and gets progressively
worse over time. He created the My
Becker's Story blog in 2010 to share my story and to help raise awareness about
Muscular Dystrophy. Along with sharing his story he also raise awareness about
accessibility and the issues people with disabilities face. The main focus behind the My Becker’s Story
blog is to tell my story in hopes that it will somehow help those living with
Becker’s Muscular Dystrophy, as well as their families and friends.
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-Life with
Muscular Dystrophy is a great personal blog written by Dan who has Becker Muscular Dystrophy and was diagnosed at age 13. Despite this, however, he has gone on to do some amazing things.
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Andy's Muscular Dystrophy blog
- Andy, is a 45 year old father of four. He lives in
the Devon fishing port of Brixham, UK. The reason for this blog he says is that
he feels like he wants to inform and offer support to people who are affected by
Muscular Dystrophy, so if anything they can be positive about the future, and
not be afraid of it.
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Becker Muscular Dystrophy Facebook Pages
The My
Becker's Story blog on Facebook - A great place to connect and
learn more about Becker Muscular Dystrophy. So if you are a parent, friend or
someone who has recently been diagnosed or are living with Becker's or any other
type of Muscular Dystrophy - you are encouraged to join them on Facebook and
start sharing your story today!
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Becker Muscular Dystrophy Facebook Support
Group - A great place to connect with parents as well as those
living with BMD.
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Muscular Dystrophy Organizations/Charites
Australia
The Muscular Dystrophy Association of Queensland Inc. today is building on the hard work of these early volunteers. The Association is incorporated and is recognised as a credible and accountable provider of services to clients with MD and their families.
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Canada
Muscular Dystrophy Canada - is a not-for-profit organization committed to finding a cure for neuromuscular disorders through well funded research. Muscular Dystrophy Canada’s dedicated volunteers and staff across the country raise funds to enhance the lives of those affected by over 150 different kinds of neuromuscular disorders by continually working to provide ongoing support and resources.
The MDA - is the non-profit health agency dedicated to finding treatments and cures for muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education.
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The United Kingdom
The Muscular Dystrophy Campaign - is the leading UK charity focusing on muscular dystrophy and other related conditions. We are dedicated to beating muscular dystrophy and other related conditions by finding treatments and cures and to improving the lives of everyone affected by them.
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The Muscle Help Foundation - is a focal point for those with Muscular Dystrophy in the UK to come to for unique experiences that are either highly personalised Muscle Dreams or tailored programmes that enrich both the beneficiary and the family creating lasting memories.
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Ireland
Muscular Dystrophy Ireland - aims to provide information and support to people with neuromuscular conditions and their families through a range of support services. Our objective is to promote through practical empowerment, independent living for people with the condition muscular dystrophy.
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South Africa
The Muscular Dystrophy Foundation of South Africa - is a non-profit organisation that supports people affected by Muscular Dystrophy and Neuromuscular disorders and endeavours to improve the quality of lifestyle of its members.
http://www.mdsa.org.za/
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http://www.mdsa.org.za/
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