Wednesday, February 1, 2012

Muscular Dystrophy Awareness in Malaysia

When I first started the My Becker's Story blog I felt all alone in this, just two years ago I had never even met another person living with Muscular Dystrophy. I never even knew that I would connect with so many people from all over the world? Through the years I have been able to connect with more than a few people outside of North America. I recently connected with Fazz a fellow MD blogger from Malaysia who is on a mission to raise awareness about Muscular Dystrophy. In an effort to raise awareness Fazz and a few of his friends have taken it upon themselves to organize the public awareness campaign known as: 1000 Faces - Strike a Pose in Defying Muscular Dystrophy. In this post we will take a look at Fazz and his efforts to raise awareness in Malaysia.
Here in North America we are more than lucky to have organizations such as MDA and Muscular Dystrophy Canada there to assist us. Currently in Malaysia there are no organizations or charities set up to address the specific needs of those living with Muscular Dystrophy. That is why I look at Fazz as a trailblazer since he is on a mission to improve the lives of Malaysian’s affected by neuromuscular disorders. The goal is to create a charity that is there to help those in need to help cover medical expenses and the cost associate with the purchase of wheelchairs. He hopes through raising awareness that he can lobby for better policies in his country concerning those living with Muscular Dystrophy. You might say that Fazz has a bit of a challenge on his hand but thanks to the support of a few key people he is off to a great start. He says: “Since he left his job almost two years ago for the first time he feels like he has something to focus on in his life. Something that is beneficial for him and others living with Muscular Dystrophy.”

He is truly dedicated to the cause and recently had to wake up at 5 AM to get ready for a TV interview on a local talk show to discuss his life and living with Muscular Dystrophy. Joining Fazz was his friend and Campaign Manager Razleena who talked about their public awareness initiative. He also recently joined Francissca Peter on the talk show sharing a bit more about the campaign, public perception regarding Muscular Dystrophy and how differently-abled people live. It was after Fazz set up his Facebook page about his life entitled Fazz Fadhilah vs. Muscular Dystrophy when he felt the urge to organize this public awareness campaign. He now plans to work very hard to gain a slot in the mainstream media to educate the public about Muscular Dystrophy and other issues related to the differently-abled. It looks like Fazz is already off to a great start and he says that he has gained so much input with what to do with his life and looks forward to more opportunities to raise awareness in 2012.

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