Tuesday, March 25, 2014

Best ways to raise awareness of Becker's Muscular Dystrophy

The best way that we can help raise awareness about BMD is to get behind and support some of the initiatives that are already in place. Last year we celebrated the first ever BMD Awareness Week and it turned out to be a great opportunity for all of us to join together to raise awareness. It must be known that BMD Awareness Week is not one man's project its all of ours, and we have to think of ways to make it bigger and better. I am sure like me we all see that the Duchenne community is a united force and we have to be as well. Think of it this way BMD Awareness Week is all of ours - it's our Awareness Week. Our only goal is to help raise awareness and I am sure all of us agree that we need to get the word out there. We all need to work "together" to come up with great ideas to raise help us raise awareness of Becker's Muscular Dystrophy.
 
It's really about supporting each effort including the BMD Project which is about all of us. It's about helping others affected by BMD. So far the support has been amazing and we thank those who have already taken part in filling out the survey. It's a project we are all authors of - it's not about any one person it's about all of us. We really have an opportunity to make 2014 a big year for raising awareness so everyone has to take part. We have come a long way in the last 5 years we just have to keep going. Let's unite and work together and I am sure we can pull this off. I am sure we all agree that every BMD blog/group/page has its purpose and we need to support each and everyone of them. If some one posts about BMD show your support by liking and share their posts. This helps us all raise awareness. If there's one thing the DMD community has going for them its their willingness to support each and every effort and yes many people have been very supportive of all things BMD which is great. We just need to take it to the next level.
 
Think about it every post on any Duchenne Muscular Dystrophy page always gets close to 100 likes and shares. There are hundreds of us living with Becker's out there so why can't every BMD related post get 100's of likes and shares as well? We really need to work together and like and share every BMD related post we find on Facebook the same way those in the Duchenne community do. We really need to speak about every part of living with BMD. Every part of our daily lives including our challenges and successes. We need to talk about everything so people understand the issues we face. If someone mentions a challenge they are currently facing offer them advice. We are all at different stages of living with BMD which gives us an amazing opportunity to learn from each other. As you know our community grows everyday so let's take advantage of what we already have which includes: The BMD Conference, BMD Awareness Week, the BMD Project and each and every BMD blog and Facebook page that is already out there.

In 2014 we have a great opportunity to raise awareness so let's work "Together". 

 
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