Sunday, June 16, 2013

The 2013 Becker Muscular Dystrophy Information Day

Over the weekend in the UK the Muscular Dystrophy Campaign presented the first ever Becker Muscular Dystrophy Information Day. It took place on June 15 in Daventry, Northamptonshire from 10am to 4pm. It was a great opportunity for families and individuals living with Becker Muscular Dystrophy in the UK to learn more about research and to connect with others affected by BMD. Families and individuals who attended the event heard from expert health professionals about activity and exercise and attended a workshop lead by a physiotherapist and also attended workshops on access to education, welfare support and relationships.
My friends Steve, Andy and Layanne at the Becker Information Day.
 The My Becker's Story blog asked a few friends who attended this event what they enjoyed most about being a part of the Becker Information Day - here is what they had to say:

Andy - I found the best thing was by far seeing other young and older men exactly going through what I have gone through. They were generally very upbeat, friendly and understanding of the issues we all face. Nice to see parents supporting their kids too. Very glad I went.

Layanne - I enjoyed learning more about research and meeting other people, men with Becker and their outlook on life.
Steve - The best part of the day for me was meet everyone who I have spoken to online for a long time now.

Andy M - It was great to meet and chat with people who have the same condition.

David - The best part was finally meeting the guys and being able to say "you know when such and such a thing happens....." and the shared sense of humour and experience.
The My Becker's Story blog wishes to thank the Muscular Dystrophy Campaign and everyone involved for putting together the UK's first Becker Information Day. 

  
Did you attend this years Becker Information day? If so please feel free to let us know what you enjoyed most about being a part of this event. Simply post your answers in our comments section found below or join us on Facebook today!


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1 comment:

  1. Neeru - I'm Information Manager at the Muscular Dystrophy Campaign. We are so glad that the Becker Information Day was so useful and a great forum to meet others with the condition. If you have any questions or require support in the future please contact the free phone line on 0800 652 6352 or email us on info@muscular-dystrophy.org
    Here's a link to our Becker page on our website
    http://www.muscular-dystrophy.org/about_muscular_dystrophy/conditions/94_becker_muscular_dystrophy

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