When it comes to the most dangerous part of my day I’d have to say it occurs every single morning when I have to start getting ready for the day. When it comes to my regular morning routine it starts just like everyone else’s day in the bathroom but my problems begin the second I have to climb into tub to take a shower. It always starts the same my first issue is getting into the tub as I am always concerned about slipping and falling as I enter into the tub. The biggest issue is that I never know when one of my legs is going to give out and it actually happened once when I was getting out of the shower and it ended with a nasty looking bruise on the upper part of my leg. But what I am mostly concerned about falling while taking a shower and like most of us who are living with Becker Muscular Dystrophy already know there`s no stopping us when we fall down. And all holding onto a safety bar will do in our shower is make us fall smashing our body against the tile wall. And I think if I was to hold onto a safety bar while falling down I might just break my arm. Now the worst thing about taking a shower in a tub is that they are so narrow and that I really have no real room to move around and if slip and fall who knows what injury I might suffer. Just today while taking a shower I bumped the shampoo bottle and where did it fall straight to the bottom of the tub a place I call a no go zone since bending over to pick it up would probably result in one of my legs giving out or my hand slipping while I place it on my knee for support. So what did I end up doing using my foot to work it back up onto the side ledge of the tub a much better place for me to pick it up from but probably not the best decision but thankfully I didn't fall.
So as you can see taking a shower in a narrow bath tub is a major problem for me and what I really wish I had was a place that was properly set up to address all my specific needs. When I was younger I was lucky enough to live in a place that had a very large walk in shower which made my life much easier but I ended up moving out of that place since the rest of the apartment was simply too small. At the time when I was living in that apartment my Becker`s Muscular Dystrophy wasn`t really a major issue when it came to everyday activities. Now at this stage of living with Muscular Dystrophy I could only dream of living in a place with a proper walk in shower which would make my life much easier. And I don`t tell this story in hopes someone will help me in some way I tell this story so that those of you out there who are younger than me who are living with Becker`s know that simple chores such as taking a shower can be made easier if you choose to live in a place that includes a walk-in shower since it will provide you plenty of room to move around in. That way you won`t be stuck like me living in a place that makes taking a shower the most dangerous part of my day. Sadly the only way for me to solve all my problems is to play the lottery since living with a disability can be very expensive. Recently I bought a ticket for the Princess Margaret Home Lottery and was really hopeful that I would win a new home or enough money to purchase a home that includes a walk in shower but like every other time I have played the lottery luck was not on my side. All I can say is if I had boat loads of money I would then live in a place that was set up perfectly to handle all of my needs for now all my hope rests in the Ontario Lottery and Gaming Corporation I just hope someday soon my numbers come up.


All very similar to me. I once slipped while standing showering in bath...grabbed hold of the shower curtain which bought the whole rail down! When we moved we had a shower with a step more than 10cm with a grab rail to help me up and also ...a shower seat that i couldn't stand up from i ripped it all out and replaced with a low-profile shower tray channeling through concete floor for waste pipe. So much easier/safer now but i still have the dropped bottle problem. Sometimes it would be nice to soak aching muscles in bath though. Sit-to-stand from loo is also a prob. And just getting out of bed takes effort too.
ReplyDeleteI know the feeling. I have stopped showering standing up. I have used a transfer bench for the last several years, it's alot safer. The only thing with a transfer bench, be very careful when you get to the edge of the bench, sometimes it tips up!! Yeh haw!! Speaking of expensive being disabled, now that I broke my leg, had to get a manual wheelchair $3000, special walker $300, proper transfer bench $100 (special), stair lift soon $3000, air cast $165, I do thank god for my long term disability insurance from my previous employer, most of this is covered except for any modifications for the bathroom - no gov't programs and or private insurance covers anything for the bathroom!! The most dangerous room for the disabled.
ReplyDeleteReally hope those numbers come up for you man I take things for granted I have Beckers live in Australia an was fortunate enough to have the Govt provide me with the use of a rental apartment 1 brm with Shower/Toilet/Laundry ensuite and Lounge /Kitchen /Dining in one it has helped immensely. Pete
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